“More funds are necessary for research on amyotrophic lateral sclerosis (ALS). More resources to aid more serious and controlled research for cures that slow the degenerating effects of the disease, for example using stem cells”, said Claudio Sabelli, an ALS patient and member of the Board of the ‘Viva la Vita’ society, writing with a visually controlled computer that communicates for him, commenting about announcements on research to fight ALS.
Claudio Sabelli
Sabelli said, “As a patient, I have an opinion that is not supported by facts for the simple reason that there are no new developments. I believe that a lot of financing goes towards weak and inconsistent research ideas. I fear that false expectations like the Igf1 or lithium tests are damaging. It is true that without pinpointing the causes that trigger ALS it is impossible to find an efficient remedy, but it’s also true that in the meantime remedies that slow down its degenerating effects can be found. I am referring to all stem cells, including embryonic stem cells.” He added, “It is pointless to continue with useless arguments: stem cells represent a concrete possibility to cure serious pathologies. Research has to enjoy maximum freedom and autonomy.”
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